Malawi teen boy suffers from strange disease: Sends SOS for neglected condition

Parents of a 14 year old Emmanuel Malunga from Masautso village, Traditional Authority (TA) Zulu in Mchinji have sounded a save our soul (SOS) to well -wishers for the care of the boy who has had a strange disease for the past four years.

The boy fails to sit properly or stay at one place, he jerks as if he has been put on vibrator bending his head side to side and unease.

According to Emmanuel’s grandmother Matilda Zulu, the boy has been taken to different hospitals and traditional healers but only to be told the boy was well as they never found anything wrong with him.

At a first stance a person might think Emmanuel is psychiatric but not, he is well and sound and is able to greet people and he is able to tell you the health problem he has.

“I stopped going to school because of this condition, I feel pain in my back and neck, nothing else,” said Emmanuel while unstable and shifting from one side to the other, bending his head and swaying like a snake.

Emmanuel writhes in pain as he talks tosocial workers - Pic by Enelless Nyale/Mana

Emmanuel writhes in pain as he talks tosocial workers – Pic by Enelless Nyale/Mana

His grandmother said they have tried their best and have even contacted church pastors to pray for their son.

“He has been in this condition for four years now. The problem started when he just turned ten, we have tried many medications but nothing has helped,” Zulu told Malawi News Agency whilst trying to lift it the boy up.

Zulu said the boy’s mother lives together with them but at the time of the interview the mother was reportedly out of the house and went to buy some groceries at the market.

Zulu recalls her grandson’s condition as started way back whilst he was in standard four and he had to drop out of school because of it.

“He just came one day complaining about the backache and the disease went to this stage, we have been in different hospitals we even tried Kamuzu Central Hospital but they still said they did not find any problem.”

“Maybe if we can go to Blantyre, we hear there is a hospital which helps children like him,” said Zulu who hoped to receive medical attention from Beit Cure Hospital.

Mchinji district Social Welfare Office Rodwell Chunga said his office has tried all it can to help the child but said it is now beyond their level and are just asking for well wishers to take the boy to a hospital where he can be helped.

“We understand that Emmanuel is still young and if it is something to do with his bones, the Biet Cure Hospital can help, we are just calling for well wishers to help in his condition,” said Chunga.

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